Meet Darrell Robinson
Darrell was diagnosed with DIPG when he was 12 years old. What is DIPG? Diffuse intrinsic pontine glioma (DIPG) is a brain tumor found in a part of the brain stem called the pons. The pons controls essential bodily functions such as heartbeat, breathing, swallowing, eye movement, eyesight, and balance. Darrell is currently under physician care and undergoing treatments.
November 2017 Thanksgiving weekend changed our lives. After enjoying the weekend with family and friends Darrell complained of dizziness. We talk with about his liquid intake, assuming he was dehydrated. After sleeping through the night without any complains and headed out to school the next morning, he seemed back to normal. However, while at school Darrell went to the school nurse and asked to call home. He called home and spoke with us, letting us know that he's not feeling well and getting dizzy again - but this time it was much more serious. I immediately rush from work to get him from school.
After picking him up I called his pediatrician to see if he could be seen. Nervous about his condition I was leaning towards going to the emergency room, and after speaking with the pediatrician's nurse we decided to go immediately to the emergency room instead. At the ER, after Darrell gone through an extensive series of tests, which included a CT Scan and MRI, the results were devastating - we were shocked by the horrific news to learn that he was diagnosed with DIPG. Submitted by Darrell Parent.
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